Sunday, 6 January 2013

Highs, Challenges and Hopes

Highs, Challenges and Hopes


The wonderful Hayley at Downs Side Up has asked for parents to comment on the last year and hopes for the coming year and this short blog is to anser those questions. If you don't read Hayley's blog you must do so - I am thinking of asking for it to be made compulsory and possibly added to the National Curriculum. Here goes......

 1) What was the high point of 2012 for you?
There are so many high points living with Emily it is hard to choose just one. However, I think that the highest has been seeing Emily really begin to mature as a young adult (she is now 20). She has started to take responsibility for remembering what's happening at college. She seems a lot calmer in many ways (although she retains her madcap sense of humour). She just seems to be more adult and after 20 years that has been wonderful to see.

2) When was the most challenging thing, the part that tested you to your limit?

Hmmm.....this is difficult. And in many ways that's good as it means nothing has been partcularly challenging or tested me to my limit. However, I think what continues to trouble me is Emily's vulnerability as a young adult with Down's syndrome. She goes to college on a community transport bus or sometimes they send a taxi (without an escort) and one day the taxi driver had set off before Emily had shut the door fully never mind strapped herself in (yes we complained). I get troubled by the inability of people like the taxi driver to see the person beyong the "pick-up". In this context Emily's vulnerability is very evident.

3) What 3 hopes do you hold dear for 2013?
In 2013 I hope that Emily continues to develop as a responsible young adult and particularly that she develops in the training she is having to become more independent (travel to and from college etc). I hope that the blog I have just started writing provides some hope to others from someone who has "been there" - "lives there" is probably more accurate! Thirdly I hope that I can give more time to learn more, read more and write more about Down's syndrome and my experience. And in saying "my" I really mean "our" because there are 5 of us and we're all in this together!

Here's to looking back in 12 months and seeing lots of high's! I hope you do too.

1 comment:

  1. Thank you for this wonderful post and for joining one of my first linkies. I look forward to learning from your journey. Love to you all x

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