Wednesday, 4 May 2016

Informed consent

Congratulations!
So pleased!
When are you due?
Amazing!
Aww lovely!
I knew, I just knew!
A boy or a girl?
Do you mind?
Course you don’t
As long as it’s healthy
Right?
As long as you’re both well


Emotions erratic
And this sickness
Who knew?
Ecstatic one minute
Then tearful
Head stuck down the loo
Nursery
Needs painting
In pastels or bold?
This bump
A true miracle
Can’t wait to hold


Visits
Appointments
Check-ups and tests
Routine
Right?
Doctors know best
A problem?
You’re sorry?
You’re not making sense!
Trisomy?
Down’s syndrome?
YOU'RE NOT MAKING SENSE!!!


Tearful
Fearful
What does it mean?
Genetics
Confusing
Explain what it means!
Why did it happen?
Why me?
Why now?
Chance?
Or my fault?
And what happens now?


Choices
Head spinning
Abort? Try again?
Disabled?
What option?
But to try again?
Wait
Don’t be hasty
Show me the life
Of someone
With Down’s syndrome
Before you take this life


A baby
A toddler
Her eyes are so blue
A gymnast
An artist
Amazing - who knew?
OK, not all plain sailing
Health issues
I see...
Delays with some learning
Help needed
I see...


Mainstream education
College
Friends
Exams
Aspirations
Vocations and plans
Talent
Inspiring
Haidresser? For real?
These photo’s
Professional
This kid's a big deal!


Perhaps life
With Down’s syndrome
Is not quite what they say
Health issues...
Challenges...
But there’s much more to weigh
On the scales
Of life
A decision with intent
Needs balanced
Information
To gain informed consent



2 comments:

  1. Wonderful Paul. I have goosebumps reading this. So much more to our kids indeed x

    ReplyDelete